Well guess what I'm doing now.....you'll never guess. I'm doing a Creative Writing course and this is the first class. I'm very keen on doing this as you can imagine and I only wish it was on for longer than it is. I've always wanted to do a proper writing course. It's something I've always loved doing, writing, words, stationary, ideas.....
We had to write a piece on 'Change' today and I was amazed and how easy it flowed - I thought I'd need quite a bit of thinking but once I started it was great fun. It was quite an angry piece when I'd finished it, but it's how I feel and that is the important part of writing, it's about feelings and emotions and that was how I felt at the time.
I've got my appointment to see Dr F about my arm/shoulder now. It's 25th of November so only a while to wait this time. I'm also going to see if Jan is around as my legs are getting harder which is not right, also Mum says they are more swollen now too. I must admit to taking these awful stockings off in the evenings and giving my legs a rest, although I am a bit nervous when the cats are around.
The fireworks are awful here, more loud bangs than fireworks. The cats are scared to death and hide behind the sofa. Poor Bertie sits there and literally shakes.
Then of course, we have Diwali which is more fireworks and noise. It's bad enough with the fireworks now we have that to contend with as well. They are supposed to be limited to a certain amount of noise and the times they can be let off but we still hear them at 1.30am in the morning and later...
I also have an appointment at the Hospital on the 15th to check my mouth, the first of my 3 monthly appointments. All these things I've now got that I never had before....lovely huh.
Mind you I am still here and so many have gone in the past few months. This disease is really awful so please help all you can when they ask for donations.
At last, after finding out I was an 'at risk case' I am allowed to have my flu jab. A trip to the Doctors and surrounded by the local OAP population I was given my jab and told to sit down for 10 mins or so.
At least I won't be getting the flu hopefully. That is a relief....
Only a few more trips to the Support Centre (I'm doing a Creative Writing Course). It's a shame as I believe that from diagnosis to death you will always need support with cancer. You may go for ages without needing anything then something will happen and you need that there for you. As I'm not in that area there is no chance of me just 'dropping in' either. That is also why I think every area should have a Support Centre not just for patients but their family too.
Another check up for the newly diagnosed Lichen Planus. It goes in ups and downs. At the moment it's OK. It has certainly restricted the things I can eat. Yet another side effect they didn't tell me about. That's another thing I feel strongly about - if a patient asks for information then they should be told, not just what the consultant thinks you should know but what you WANT to know.
There was a 'student doctor' in there this time. Mind you he did keep yawning a lot, I hope it was just because he was tired!!!
We had a chat about a few things, the leg pains that will never go away. Something I have got to get used to which is hard sometimes.
He said he'll call me in a months time to see how things are going.