All the Acronyms and TLA's you'll need that are related to cancer. If you know of any I've not got here then please let me know.
Here you will find details of all the hospitals, medical centres, scanning
centres and other medically related places I've been to in my chequered
history as a NHL patient.
You will hear lots of different named thrown around in the cancer world, so here are the different explanations of Biopsies. Be warned this is a bit gory in places.
Charity Events Diary
I've just listed the general national events here, it'd take me forever to list every single event I know of nationally and locally. If you want info on a specific event and I know about it I can tell you, or you can always look on the charities website. If you would like to promote any
events email me
with further details and I'll be happy to add
them for you.
CHOP and it's effects
This is the chemotherapy I had for my Non-Hodgkin's Lymphoma. If you're
having it too, then here's all the details about it. If not don't worry,
other chemotherapy options will be added here soon.
Now's the time to get more involved and make sure your voice is heard. The more of us that put the power behind this disease, the more power it will give us. I remember when my stepdad had cancer, it was a 'hushed subject' - now it is much more open but there is still a long way to go in places. Make it easier for those who follow you....
Glossary of Drugs used
in Cancer treatment
This is not an exhaustive list by any means as new ones are added almost
daily, but they are the ones you will come across most often.
Health - Gallbladders
OK so it's not about cancer, but the Consultants do tell me that it happened as a side effect of the chemotherapy. Chemotherapy affects a LOT more than just the normal side effects of hairloss and nausea. Some are long term and I will be starting another section on this soon. Watch out for it coming to a PC screen near you soon!
Yet another side effect for me of the radiotherapy treatment. I was NOT told about this side effect and as it is a CHRONIC LIFELONG side effect, then I think we should all be told, and we should all be aware of the symptoms and what to look out for. The earlier this is caught the better for the patient. Sadly it took me almost a year for my Consultant to listen to me, now I have major problems. I say no more......!
Did you know there are 35 different types of Lymphoma? Neither did I. I do know a lot of them now though, specially one called PrimaryBone Non-Hodgkins Lymphoma! Aren't I the lucky one.
My Cancer Rights
As a cancer patient, you have rights. Hell, as any patient you have rights. Make sure that the Doctors first of all treat you like a HUMAN BEING - I've not had that from all of my Medical Professionals but it should be a basic human consideration shouldn't it really.
NHL Famous Patients
Well you are in a very special club here you know. It's not just us 'Joe Public' that gets cancer, even famous people get it too. Check out who has had NHL and survived it as well some of the time!
NHL for Beginners
A sort of "Dummies Guide to Non-Hodgkin's Lymphoma" which
you may find interesting to read. An easy explanation to a complicated
A sort of "Dummies Guide to Non-Hodgkin's Lymphoma Stages"
- there's more to NHL than just the disease, it is at different stages
This is an IV Line and is discussed in detail with thanks to the University
College Hospital for the information. If you are having a Hickman Line
fitted (I had three attempts and all failed due to my now infamous veins!)
then worry not, this is to be added here later.
Primary Bone NHL
There is not that much information about Primary Bone Non Hodgkins Lymphoma out there, but I'm always searching for more. Several medical professionals have also emailed me with more links, so watch out for updates as and when...!
Questions to ask
Been diagnosed with Non-Hodgkin's Lymphoma or cancer in general? Your
mind goes completely blank, so here are a list of questions that you
may wish to use when you see your Consultant for your follow up meeting
prior to the start of treatment.
Everything you could want to know about radiotherapy but were afraid
to ask - well something like that anyway!
There is always loads to read on cancer if you are interested. Or perhaps there is a book that is related to it you might like. If so, let me know and I'll upload the details here for you.
And Remission is?
Exactly what the word remission means to Non-Hodgkin's Lymphoma patients.
If you're in remission - lucky you. If not, don't worry we'll all get
There are many many different types of scan you may have as a cancer patient, indeed any type of patient. So here are some more details about the scans. I'm well into double figures for my scans now so although not an expert I am kinda knowledgeable about them! LOL!
This section is split into three: benefits, national cancer organisations
and helplines and NHL Organisations. I This section is split into three: benefits, national cancer organisations
and helplines and NHL Organisations. I've personally found a few of
these extremely useful in my quest for information on Non Hodgkin's
Lymphoma and cancer in general).
Here you will find a very much improved dictionary of all cancer, Non-Hodgkin's
Lymphoma and general medical terms. Check out your "consultant
speak" if you're not sure about it!
Whats Up Doc?
The Furry Monkey now has it's own Advisor, Dr X, who is a health professional with many years experience. He specialises in laboratory medicine and has a background in academic research in addition to his duties in the NHS and private practice. If you have a question, email me.