The Furry Monkey

SUPPORT

Here you'll find listed below some websites (I have personally found a few of these extremely useful in my quest for information on Non Hodgkin's Lymphoma and cancer in general). If you would like to see any additions here, then email me and I'll add them in for you.

It is split into sections at the moment, but this could change - you never know with me! I've also added in a new section that will grow with time. It's "Other Health Related Sites" - mainly things that I have had experience or had contact with, ie. gallbladder surgery is a good starting point!

Sometimes links fail (which can be for many reasons as we all know!) - if you come across one that is no longer valid please let me know.

As you know, the Furry Monkey does not endorse ANY site but puts these links here for information only. The choice, as they say, is yours....!

Click on the link to start reading :-)


Sections

 

benefits

 

CANCER Related

 

NON-HODGKIN'S LYMPHOMA WEBSITES

 

personal websites

 

OUR HEALTH

ARTHRITIS

COMPLEX REGIONAL PAIN SYNDROME

DIABETES

 

GALLBLADDER

IBS

LYMPHOEDEMA

 

OTHERS

 

THANKS!

 

BENEFITS

This section, although entitled benefits, is not just about those. Here you will find information on other associations (for e.g. Carers Associations) which may be of help to you. Also goverment departments and (if you are in Surrey, UK) a few local organisations who can help you with form filling and information on disability.

Association of Community Health Councils for England and Wales
Community Health Councils (CHC) act as the 'watchdog' body that monitors the NHS services you receive and is the consumer's voice to ensure that your needs, views and concerns are being considered. They provide useful leaflets, information on local services, hospices, self-help groups. CHCs will also help you to enquire/complain about your care and treatment.
30 Drayton Park, London, N5 1PB
020 7609 8405

Carers National Association
Provides information and support to any carer by telephone or letter. There are local branches across the UK.
20/25 Glasshouse Yard, London, EC1 4JS
0345 573 369 - Carers Line 020 7490 8818

DAIRS (Disability Advice & Info for Runnymede and Spelthorne)
DAIRS offers a free, confidential, independent information and advice service on all aspects of disability to Runnymede and Spelthorne people with disabilities, carers, relatives, friends and professionals. The service is staffed by volunteers, who all have experience of disability, and a paid Manager.
12 The Sainsbury Centre, Chertsey, Surrey, KT16 9AG
Tel 01932 562102
Minicom: 01932 566622
office@dairs-runnymede.fsnet.co.uk

Hospice Information Service
Provides information on the provision of hospice and palliative care services both in the UK and Ireland. Their website has general information about hospices and palliative care together with a directory.
St Christopher's Hospice, 51-59 Lawrie Park Road, Sydenham, London, SE26 6DZ
020 8778 9252

National Association of Citizens Advice Bureau
NACAB will be able to give you details of your nearest Citizens Advice Bureau or you can look in your local telephone directory for your nearest branch. They are advice-giving agencies aimed at helping with welfare benefits, housing and money problems, family and personal matters, and legal enquiries.
Myddelton House, 115-123 Pentonville Road, London N1 9LZ
020 7833 2181

The Patients Association
The Patients Association listens to the concerns of patients and aims to empower them to make informed choices and speak for themselves with confidence and conviction.
PO Box 935, Harrow, Middlesex, HA1 3YJ
020 8423 8999 - Patient Line or 020 8423 9111 - Administration

 

 

cancer

All the organisations in this section are general cancer organisations. If you would like more specific information about a certain type of cancer, please let me know as I may just have the details for you in my ever growing Support Group Listing!

This list is ever changing and growing, so please bear with me. Thank you.

A New Approach To Cancer
 Promotes the positive benefits of holistic and self-help methods and can refer people to a wide network of holistic practitioners, clinics and self-help groups in the UK. Healer counselling, homeopathy, hypnotherapy, massage (therapeutic and remedial), nutrition, osteopathy, and reflexology.
St Peters Hospital, Guildford Road, Chertsey, Surrey KT16 0PZ
Freephone 0800 389 2662
01932 874 349

Asbestos News
Asbestos News provides medical and legal information about mesothelioma and asbestos exposure. I know quite a few Mesothelioma patients use the Furry Monkey site for information, so this link might help you with information.

BBC Guide to Cancer
Clear, quality health information from the BBC. This site offers you a look at the forms of cancer, details on treatments available, medical terms explained, and organisations which offer medical and emotional support. Further sources of information are listed too along with factsheets on lung cancer, skin cancer, dietary cancer, men's and women's cancers, that you can print off and keep for reference.

Cancerbackup
Cancerbackup is Europe's leading cancer information charity. Its website contains over 4,500 pages of up-to-date cancer information, practical advice and support for cancer patients, their families, carers and friends. It also provides a free telephone helpline with specialist cancer nurses who can give information on any type of cancer or treatment and provide emotional support, practical advice, and details of local support groups and other services for people with cancer. Cancerbackup also provides 9 local walk-in centres across the country and produces 67 patient-friendly booklets and over 220 factsheets that are free to patients.
3 Bath Place, Rivington Street, London, EC2A 3JR
FREEPHONE 0808 800 1234
020 7696 9002

Cancer Care Society
Offers free, confidential counselling, emotional support and practical help for anyone whose life is affected by cancers.

Cancer Help UK
Written in plain English for people with cancer & their carers.

Cancer Helper
Cancer information including treatment options, symptoms and more.

Cancer Index
An extremely comprehensive and well-resourced site with a wealth of information on cancers and links to a wide range of other sources of information.

Cancer Info
A useful website for anyone looking for information on all types of cancer. Includes lots on Non-Hodgkin's Lymphoma which is of special interest to moi of course!

Cancerline UK
A resource website for cancer networks and mult-disciplinary teams (MDTs) working in primary and secondary care. Patients and carers may also find the website of great value, and patient leaflets on various topics are included.

Cancerlink
Provides emotional support and information. Over 750 support and self-help groups nationwide. Cancerlink is part of Macmillan Cancer Relief.
89 Albert Embankment, London, SE1 7UR
020 7840 7840
cancerlink@macmillan.org.uk

Cancer Research UK
Cancer Research UK was formed from the merger of The Cancer Research Campaign and The Imperial Cancer Research Fund. It is the foremost cancer charity in the UK and the largest cancer research organisation in the world, outside the USA. Cancer Research UK also supports the CancerHelp UK web site and is responsible for developing and maintaining the site's Clinical Trials Database.
P.O. Box 123, 61 Lincoln's Inn Fields, London WC2A 3PX
020 7242 0200

Cancer Survivors
If you've had cancer, you are one of these....! Show this site your support by clicking on the name above and registering. The more people that join, the more of us that can share the support of 'living with cancer' post treatment. It doesn't just end once the treatment has ended does it...?

Cancersource
The mission of CancerSource is to be the most comprehensive, accurate, and personalized source of cancer information and services available. We serve the needs of our readers, both consumers and healthcare professionals, by providing free, always available access because we believe that knowing helps. They're right there!

CancerWeb
Information available on many different aspects of cancer, investigation and treatment.

ChemoCare
Chemotherapy Drugs and Side Effects Information - Scott Hamilton's chemotherapy site offers the latest chemo information for cancer patients and their families, caregivers and friends. Outlines all you should know about chemotherapy and cancer treatment.

CancerVOICES
Samantha Fanning from Macmillan says 'The web offers people affected by cancer, as well as health professionals working in the sector, an additional way to empower themselves with information. Government initiatives to e-enable the population also puts the onus on charities to get it right. We want to help lead people through the maze of material that's available, and deliver it in the most accessible manner for them". Go and check it out, join in the discussions and get your voice heard!

cancerwarriors.net
Interesting info on lots of cancers, including cancer survivor stories....there are lots of us around....have a read.

Institute of Cancer Research UK
This is not a self help group but their web site provides links to many cancer support and information resources for patients and carers. Includes Everyman - action against male cancer - the Institute of Cancer Research's campaign to raise awareness of testicular and prostate cancer.

International Society of Bone and Soft Tissue Pathology
Mainly for Pathologists, other Physicians, Clinical scientists and Pathologists-in-training but there is some useful links here to check out!

I can Magazine
I first became aware of this magazine in the Chemotherapy Suite in the UCH London. It has lots of useful articles and explanations of treatments and tests. I only read this when I see it at UCH, I've tried getting a copy of my own but no one gets back to me. See if you have more luck than me!

Myeloma UK
Myeloma UK informs and supports people affected by myeloma and provides a freephone myeloma infoline, free patient information packs and a wide range of publications and services for anyone associated with myeloma, including a bi-monthly newsletter myeloma today UK. Registered as a charity in 1997, itis the only organisation in the UK dealing specifically with myeloma and its related disorders.
0800 980 3332
theimf@myeloma.org.uk

Learning Place Online
An interesting website written mainly from the aspect of cancer patients. A jokes section (thanks for the permission to use some of them!), spiritual side of cancer, living with cancer, you name it and it's there. Go check it out!

Life with Mesothelioma
Life with Mesothelioma is still worth living to the fullest. Visit them at LifeWithMesothelioma.com. This site was suggested to me by Jason Bennett. They are a new site all about Mesothelioma and lung cancer. He liked my " established... ummm, unique, site" so I am pleased to put in a link to his site in return for his praise! Let me know if there's anything else I can help with Jason.

Macmillan Cancer Support
Macmillan Cancer Support provides care and support for people with cancer at every stage of their illness through Macmillan nurses, Macmillan doctors, building cancer units and a programme of financial help for patients in need. Their phone line offers information, such as details of local support groups, and emotional support.
89 Albert Embankment, London, SE1 7YQ
020 7840 7840 or Macmillan cancerline: 0808 808 2020 Mon - Fri 9am - 6pm

Marie Curie Cancer Care
Runs eleven centres (hospices) throughout the UK, and a nationwide Marie Curie nursing service, providing hands-on care for patients in their own homes throughout the day or night, free of charge.
89 Albert Embankment, London, SE1 7TP
020 7599 7777

Mouth Cancer Foundation
This link was sent to me by my good friend Louise. More and more mouth cancers are being diagnosed, specially with a serious lack of NHS dentists in many areas. I have Lichen Planus post chemotherapy and now have to be checked every three months for five years and then annually after that. Apparently it can turn to mouth cancer in some cases, but thankfully not all. Check them (and your mouth!) out now!

mywavelength.com
This is a free, web-based support network where you can get in touch with other people who have the same cancer type as you or your relative or friend. Just click the link, choose 'C' for cancer and choose the cancer type you are interested in from the list. You can join the network and post a message asking other people to contact you through the site. The network is safe and confidential. People can only contact you through mywavelength.com - they will not be given your email address.

Mesothelioma.com
Marc Murray kindly sent this link to me about their site. Although it contains adverts for Law Firms (US based) - and something the Furry Monkey doesn't normally promote, the information contained is excellent and helps people affected by this disease. It was developed to be a complete guide to Mesothelioma for everyone.  They have developed their mesothelioma help guide through various freedom of information act requests along with countless hours of research. The information compiled by their team is some of the most up-to-date Mesothelioma information around. Thanks Marc!

Mesothelioma and Asbestos Awareness Centre
Jason volunteers for the Mesothelioma & Asbestos Awareness Center. They offer comprehensive information on the diagnosis and treatment of mesothelioma to patients and their families, as well as a number of unique resources - including clinical trial updates and daily mesothelioma news.

Mesothelioma and Me
I've been contacted by Debbie who runs this site. She was inspired to create this site after seeing the Furry Monkey which is an honour, thanks for the compliment Debbie! Go and check out her site, there are not so many on this subject and this will help provide people with more info on it.

Mesothelioma Online Advice
Abdulrasool has created very informative and educational website on Mesothelioma Cancer and Asbestos. It is a great resource for mesothelioma cancer researchers and patients alike. Check out the link for advice on mesothelioma, asbestos induced cancer and treatment.

Mesothelioma Information and Resource Group
MIRG is an organization created to assist patients, families and loved ones in learning about Mesothelioma and other asbestos injuries. It is the aim of MIRG to provide information and news about the disease, its causes, its treatment and its personal and legal impact.

Mesothelioma Treatment Centres
Provides information on mesothelioma cancer, the traditional and alternative treatments used, as well as information on the legal and financial implications of dealing with mesothelioma. A US based site but has some useful info on Mesothelioma too.

Michele Zuzalek - Picczees
Michele started developing her product when she became a patient herself. She wanted to create a cover-up garment for patients that would conceal the catheter/picc line in a fashionable way and that would also help to build their self-esteem. Check out all the different options available!

National Cancer Alliance
The NCA is an alliance of patients and health professionals, their relatives and friends working for improvements in cancer services, treatment and care throughout the UK.
PO Box 579, Oxford, OX4 1LB
01865 793 566

National Association of Laryngectomee Clubs
 The National Association of Laryngectomee Clubs connects the many clubs which exist all over the country. Although they have no internet site you can write to them via that old fashioned thing called "snail mail".
NALC, 6 Rickett Street, Fulham, London SW6 1RU

National Association of Neck Breathers
This Trust was set up by the late Sydney Norgate (laryngectomee) and is now administered by his daughters. It provides free help and information to Laryngectomees and their carers. Again this one has no internet site, but can be contacted via snail mail. Thanks to Louise for this information!
The Cancer Laryngectomee Trust, P.O. Box 618, Halifax, HX3 8WX
Contact: info@cancerlt.org

Paul Bevan (now Thames Hospicecare)
Based in Ascot, Berkshire the Paul Bevan Cancer Foundation is committed to improving care for people suffering from cancer and other life-limiting illness.

Quest Cancer Research
Quest funds medical research to detect initial signs of cancer in both adults and children. Quest is the cancer charity that concentrates its resources to develop routine testing so that first signs of cancer can be detected and treated. No animals are used in the research.

Rare Cancer Alliance
The primary purpose of the organization is to disseminate information and provide support to rare cancer patients. Most members are rare cancer patients themselves, who have had to go through the process of wading through the information (or lack of information) on the internet for their rare cancer.

Royal College of Radiologists
This a recommended website that has been released from the Royal College. It takes patients through the experiences of having most of the common radiological examinations, c-ray, CT, MRI, Mammograms etc, but also of radiotherapy and some chemotherapy.

Royal Marsden
A leading UK cancer centre, recognised worldwide for the quality of its services. Site includes comprehensive, authoritative patient information.

Self Help and Support Groups - Patient Information Publications (UK)
This site includes an index of UK links to health related self-help and support groups sorted by disease type / medical topic. There is a page of links to cancer related support groups in the UK.

Self Help Groups
Although not exactly a cancer website, it has a list of self help groups which may help you. Contains details of over 800 self help groups, including nearly 30 cancer groups.

Sloan Kettering (USA)
According to Trevor this is "a grown up site listing a lot of herbal remedies etc". He has found it useful in discussions with some of his patients. It is run by the Sloane Kettering medical facility in the US.

SWSH Cancer Network
A central resource providing informationf or: patients and their families, carers, healthcare professionals - shame the Furry Monkey isn't on there...!!

The Asbestos and Mesothelioma Center
Richard Moyle, webmaster of asbestos.com emailed me about his site. There is more and more info on Asbestos and Mesothelioma and it's not before time. Sadly this cancer is becoming more common and we all should be aware of how to protect ourselves.

UCL Hospitals NHS Trust
Welcome to UCL Hospitals NHS Trust. They are one of the largest and busiest NHS trusts in the country. They provide specialist and general hospital services for patients locally, regionally and nationally.

Understanding Genetics
This resource has been developed to illustrate the impact and utility of genetics on real life health care and to help practitioners gain more understanding of genetics in professional practice.

World Cancer Research Fund
WCRF is dedicated to saving lives by funding cancer research and providing education programmes that expand the understanding of the importance of food and lifestyle choices in the cancer process. Site includes leaflets on specific cancers, cancer prevention and nutrition.

 

NHL


All the organisations in this section are Lymphoma or Lymphoma related.

Anthony Nolan Bone Marrow Trust
The Anthony Nolan Research Centre runs the world's largest register of bone marrow donors. The donors are fully tissue typed for matching with people waiting for marrow. All donors are volunteers. Anyone wishing to be a donor should contact the Donor department.

British Bone Marrow Donor Appeal (BBMDA)
The BBMDA works with the National Blood Authorities in England, Wales and N Ireland to compile a national computerised register of bone marrow donors. Anyone wishing to be a donor should contact their local blood transfusion service. You can find out more from the BBMDA website, or email enquiries to them. The telephone number is an answerphone, with a recording directing you to the website. You can also leave a message.
PO Box 2022 Thornbury, Bristol, BS35 3WA
01454 412426 (recorded message)
enquiries@bbdma.org.uk

Cancer Information NetworkCancer Information Network
Non-Hodgkin's Lymphoma is a group of malignant diseases which develop from the lymphatic system. This year, more than 50,000 people will be diagnosed with this malignancy. The diagnosis of NHL brings with them many questions and a need for clear, understandable answers... this website can provide some of those answers for you.

Carols' Smile
I found this charity whilst coming back from a charity event for the CREST! We stopped at a service station and by the till was a collecting box for Carol's Smile. I noticed it was a Lymphoma Charity and wrote it down to check when I got home what it was all about. Graham you've done a tremendous amount of fundraising in memory of Carol. Good Luck with everything and keep walking and keep smiling! She would be SO proud of what you've all achieved in her memory.

HUG (Ireland)
Hodgkin's and Non Hodgkin's Lymphoma (Ireland)

Leukaemia Care Society
A support group extablished in 1967 which provides support for children and adults with lekaemia and their families. The web site includes detailed information about the Society and its programmes, medical overview and related links.

Leukaemia and Lymphoma Society (USA)
A national voluntary health agency dedicated to curing leukemia, lymphoma, multiple myeloma, and Hodgkin's disease. The web site includes details of the 58 chapters of the society, information booklets, patient services, research etc.

Leukaemia Research Fund
The Leukaemia Research Fund raises funds for research into causes and treatment of leukaemia, myeloma and lymphoma. Provides a patient information service and produces a booklet on lymphoma and treatment.
43 Great Ormond Street, London, WC1N 3JJ
020 7405 0101

Lymphoma Association
Provides information and emtional support for lymphoma (Hodgkin's and Non-Hodgkin's lymphoma) patients and their families. Literature, a newsletter and videos available. Network of helpers with experience of the disease. Groups in some local areas.
P O Box 386, Aylesbury, Buckinghamshire, HP20 2GA
01296 619400 (Freephone Helpline 08 08 808 5555) Mon-Fri 9am-5pm

Lymphoma and Leukaemia Support Group
 This is a UK based support group for Lymphoma and Leukemia. They offer support and information and have a local group meeting in Nottingham.

Lymphoma Information Network
Lots of useful information on Lymphoma, specially the rare Primary Bone Lymphoma which I have.

Lymphomanet.org
Andrew has emailed me about his new website on Non-Hodgkin's Lymphoma. Well done Andrew - the more info out there the better! It aims to help improve communication about Non-Hodgkin's Lymphoma and its treatment. Non-Hodgkin's Lymphoma is a complex disease, not often in the public eye. Yet treatments are available, and many people with certain types of the disease can be cured. Others may enjoy relatively long periods of time with few, if any, symptoms. Lymphoma-net.org contains a wealth of background materials that patients and carers can refer to in their own time, helping them to have better-informed discussions about Non-Hodgkin’s Lymphoma and its treatment.

Lymphoma Research FoundationLymphoma Research Foundation
I personally found this Association extremely helpful and they provided me with a lot of very useful information, even with american spellings!
The California office is mainly for Patient & Professional Education, Services and Support. The New York office deals mainly with Public Policy, Research Grants, Finance and Development.
(LRF), 8800 Venice Boulevard, Suite 207 Los Angeles, CA 90034
(310) 204-7040 or (800) 500-9976
or
111 Broadway, 19th Floor New York, NY 10006
(212) 349-2910 or (800) 235-6848
LRF@lymphoma.org

Lymphoma Support and Research (Australia)
Tracey Winton has just told me about this site now that she has just let it loose on the world. This group was started by her Mum and another sufferer and has been the driving force in them becoming incorporated which allows them to go to the next level, the current board are all sufferers at different stages of the disease. The more people that are aware of this disease the more effective the group will become. The aim is for the association to go Australia wide with groups already established in WA, Vic and NSW so it is no small task as you can imagine.

Lymphomation.org
A very detailed site on Lymphomas recommended by Anjou - thanks for this. It's one I've checked out in the past but hadn't listed!

NHL - Non Hodgkins Lymphoma Support Group
Email discussion list - handy if you just want to find out answers or ask a specific question yourself.

NHL Cyber FamilyNHL Cyber Family
Over 800 people from around the world belong to this "Cyber family". Lots of information and support. They also have a support group on Yahoo at http://groups.yahoo.com/group/nhl if you want to join or ask any questions. Scott Pallack (copyright on the remission document on this site) is the guy who originally created their Support Group. I've posted a couple of times but not had any replies to my question, maybe it was too specific. Anyway give it a go and let me know if you have any luck!

NHL Support Group
Non-Hodgkin's Lymphoma Support Group is located under "People and Chat" - there is a message board, chat room, documents and other useful info. Always willing to help with support.
LymphomaSupport@groups.msn.com
www.hotmail.com

 

personal sites

Melody Lassalle
A personal site (well actually two!) from my good friend Melody Lassalle. We've been friends for a long time now and we now email instead of letters. She has a website on her great passion in life genealogy and also one on Chronic Illness as she has suffered for many years with ankylosing spondylitis, a form of arthritis. Check them out and see Sierra who is her dog who has had her leg amputated. She is now doing well though and gets lots of sympathy bless.
www.islandroutes.com (Genealogy)
http://www.chroniclife.com (Chronic Illness)

Sarah YauSarah Yau
Although Sarah went to Germany for treatment not available in the UK, sadly the cancer won this fight - sometimes no matter how hard you fight you can't win. I've left the link up in case they do more fundraising.

Gareth Brandon
A personal site for Gareth (made by Daddy) who has Desmoplastic Infantile Ganglioglioma - a very rare paediatric brain tumour. Only 25 families are known worldwide.
25 Ann Street, Edinburgh, EH4 1PL
01506-436164
chair@braintumouraction.org.uk

Heather - Butterfly Dreams
A personal site regarding NHL (Heather had NHL Stage 4a) and other health related issues (as well as graphics and stationery for your mail program). Strangely again, no monkeys! Apart from the mention of Furry Monkey on the cancer page of course!

Janos Czipri - His StoryJanos Czipri - His Story
Janos was in remission for 15 months and is now back on the long road again. Keep fighting Janos - you're a strong man and can cope with this little problem! The site hasn't been updated since November 2005 and although I've emailed Janos I've not had a reply back. Hope everything is OK with you Janos!

Lawrence Wray
A very informative site here from Lawrence. Everything from Hickman Lines to Benefits. Lots of useful sections to keep you reading long into the night!
www.lawrencewray.co.uk

SRCT.com
Richard has just started this database site of treatments for the sarcoma Desmoplastic Small Round Cell Tumor. Desmoplastic Small Round Cell Tumor is an aggressive cancer that usually occurs in multiple masses in the abdomen and affects the lymph nodes and lining of the pelvis and abdomen. The most common symptoms are abdominal pain, abdominal mass, and symptoms of gastrointestinal obstruction. Go and check it out and add to the database if it's "your bag" as they say!

Mike Chapman
Mike has a website all about his hip replacement operations. It is partly written as his hip which is an unusual angle (no punintended Mike!) to write from. He even has photos of his xrays on there too.

Julia Darling
This is the website of the poet, playwright and novelist Julia Darling. I've chosen this page as a starting page as the poem says it all. Please take the time to read it, and then browse the rest of the site too, very interesting reading.

Mick Mason (FAP Gene)
FAP is an inherited condition which mainly affects the large intestine (also known as the large bowel or colon and rectum). People with FAP develop many polyps (which are like small cherries on stalks) inside their large bowel. There are many different types of polyps but these particular polyps are called adenomas (the "adenomatous" in FAP). An adenoma can in time turn into a cancer which is why it is so important to make sure anyone at risk of inheriting FAP is examined.

Jimby (Monkey friend of Mick Mason)
Jimby is a monkey friend of Mick and now has his own website. There's obviously a monkey theme running here!! Check out his site and see what he gets up to. Monkeys rule!!! :-)))

Our Health

Arthritiscare.org.uk
About one in a hundred people get rheumatoid arthritis. People of any age can develop it, but it's most common between the ages of 30 and 50. It affects three times as many women as men.

Arthritis Research Campaign
 The Arthritis Research Campaign (arc) aims to advance the understanding, prevention and treatment of arthritis and related conditions. They fund research into all forms of arthritis, and provide information on arthritis to the public and health professionals.

Arthritis Foundation
All you need to know about arthritis and rheumatoid arthritis in particular.

he Arthritis and Glucosamine Information Centre
Looking for high-quality information on Arthritis or Joint Pain? Come to the Glucosamine and Arthritis Center for in-depth infomation, clinical research, treatment options, and advice on how to maximize joint health so you stay healthy and flexible!

UK National Rheumatoid Arthritis Society
UK national rheumatoid arthritis society providing information on rheumatoid arthritis symptoms, auto immune disease as well as joint replacement surgery.

Diabetes UK
 Is the leading charity working for people with diabetes. They fund research, campaign and help people to live with the condition. Their mission is to improve the lives of people with diabetes and to work towards a future without diabetes.

Diabetes.co.uk
Aim to provide you with information, services, products and resources for those with diabetes and those caring for diabetics. Diabetes in the UK affect almost 2.5 Million people.

West Suffolk Diabetes Service
Also applies to every diabetes sufferer worldwide. Lots of useful information on dealing with the day to day live.

The Diabetes QuizThe Diabetes Quiz
Jacob has emailed me to tell me all about the Diabetes Quiz. It's a very useful site as I've gone through the quiz myself as my Mum is diabetic. There are many thousands of people walking around who are diabetic and don't realise it. This is SO dangerous. The Diabetes Quiz is an educational site to learn about diabetes. The Flash quiz has over 100 questions and topics include: diabetes basics, diet and food, exercise and fitness, stress and relaxation, statistics. There is also a Flash browser on the site to view and print all questions and answers. The interface is simple and both kids and adults will find this new educational resource a unique way to learn about diabetes.

The IBS NetworkThe IBS Network
I tried emailing this society and although they couldn't help me via email, they did suggest I call their helpline who would be able to advise me further. If you have any queries regarding IBS, then give them a call. The mission of the IBS Network is to inform, support, and educate those with IBS and their families and carers; to improve the quality of life of those with IBS and to raise public awareness of IBS and the issues surrounding this condition.
IBS Network, Northern General Hospital, Sheffield, S5 7AU
IBS Helpline (calls answered by specialist IBS nurses) 01543 492 192 Monday to Friday 6pm to 8pm This line is also open on Saturday Morning 10-12 noon
Reg. Charity Number 1057563

IBS TalesIBS Tales
Read the personal stories of IBS sufferers and share your own experiences. As someone who suffers this due to medication, I appreciate how it affects daily life.

Healing IBSHealing IBS
Dr Phil Hariram has told me about his website at www.healingibs.com - Irritable Bowel Syndrome is a common disorder strongly associated with major burden of illness, poor quality of life, high utilisation of health services and high rate of absenteeism from work or school. This is the main page, but check out the Links too for more sites (including Furry Monkey!).

British Lymphology Society
The British Lymphology Society (BLS) is a multi-disciplinary group of health care professionals and other interested parties directly involved in the management of lymphoedema or interested in furthering the work of the Society.

Cancerbacup.co.uk
Understanding Lymphoedema from CancerBACUP of the UK.

Lymphoedema.co.uk
Lymphoedema is a very common problem - causing swelling of legs, arms and sometimes the body. Often over-looked in the UK, the aim of this web site to to inform people about this condition and what treatments are available to those suffering from Lymphoedema.

Lymphoedema People
A very helpful site from Pat O'Connor specially created for and by people with the medical condition known as Lymphoedema. Lymphoedema is a condition that occurs from a damaged or dysfunctional lymphatic system. There are two different types of lymphoedema, primary or secondary. This site explains everything you could want to know I think!

Lymphoedema Support Network
The Lymphoedema Support Network (LSN) is a national UK charity which provides information and support to people with Lymphoedema. Lymphoedema is not a well documented condition. (I have this as a side effect of radiotherapy and it continues to this day). This group can offer support, help and information to those affected by lymphoedema due to cancer or other causes.

Steve Norton - MLD Instructor/Trainer
A very informative site even if you aren't training. Recommended by Jan Eversfield my Lymphoedema Expert and a lovely knowledgeable lady. Thanks for making me feel a lot better, specially after my appt with Dr C which really deflated me. Steve has been working as a medical massage therapist since 1986, and is Nationally Certified. Steve received additional training in Complete Decongestive Therapy at Lerner Lymphedema Services P.C. in 1993. He went on to become the Chief Therapist of Lerner Lymphedema Services, P.C. clinics in Princeton, NJ. and New York City from 1994-1999. Additionally, Steve has been an assistant instructor with Lerner Lymphedema Services Academy of Lymphatic Studies under the direction of Robert Lerner, MD.

UK Lymph.comUKLymph.com
On this site you will find some basic information about Lymphedema, treatments that are currently available together with comments from sufferers on how effective they have found them to be, latest news on the fight against Lymphoedema, information on the Lymphoedema Support Network (LSN), the UK charity under which the East Kent Lymphoedema Support Group operates, a message board for visitors, and links to other sites that might be of interest to you.

others

Drug3K
Confused about drugs you've been prescribed? Then check out Drug3K as it features detailed information on prescription and medications including description, image drug, use, dosage, storage, precautions, and side effects. Prescription drug information for consumers who take the actual drugs!

Careplace.com
CarePlace is an online community for people with similar health concerns and their caregivers. They've just added a new Non-Hodgkin Lymphoma community to the site and would love to hear what you think. It's a unique online support network for those with rare disorders. Check it out and let them know.

Acne Assasin
Melissa emailed me telling me about her website/blog after seeing Acne Helper on here. Hope the link is OK Melissa and well done for helping others with the same problem as you - similar to the Furry Monkey!

Acne Helper
Learn how to effectively stop and treat acne with a new site from Brandon whose mission is to provide you with a way of dealing with acne. Here you can find many different ways to not only treat acne, but prevent it before it occurs.

Fibromyalgia Support GroupFibromyalgia Support Group
A community of patients, family members and friends dedicated to dealing with Fibromyalgia, together.

Healthopedia
A medical and health consumer information resource containing comprehensive and unbiased information in patient-friendly language from trusted sources on over 1,500 health topics, 70 focussed health centers, and more than 11,000 drugs and medications. Thanks for the link Laurie!